So, today was the day to get organized. Despite planning
this over the last few months, for some reason, being at the registry is
reminding me of just how much there is to do. For now, I need to work on a
tentative timeline of what I should have accomplished just so I don’t get
complacent. Over the next few weeks, I would like to talk to registries in
other catchment areas outside of Hawai’i. For today, I’ll list them out as well
as their contact information. In addition, I wonder if I can be walked through
the registry process from clinical diagnosis to hospital reporting to catchment
region registry reporting to pacific region reporting. I feel like this might
be a very complex process. So, I’ll be researching what I can about the process
on the side.
