Wednesday, September 11, 2013

Day 3 (Sep. 9): Accreditation, Ethics, and the Tissue Repository

Ethics plays an important role in medical practice and research. As of 2009, the UHCC- tumor registry has 203,500 diagnosed cases on record dating back to 1960. This extensive collection of data can easily be overlooked as a study group, but if there is anything that today has taught me, it is that each human subject is entitled to a quality of care that will offer them a superior level of protection from harm, exploitation, and breach of privacy. UH and its various "silos" of IRBs are seeking accreditation by the Association for the Accreditation of Human Research Protection Program (AAHRPP). This would place the associated institutions amongst a small group of universities, hospitals, pharmaceutical companies, etc. that offer peer-set best practice standards of measurement based on federal human subject protection regulations that undergoes routine self-regulation and self-evaluation. Understanding the standard of service expected will be important as I start my CITI training on the protection of patient privacy, beneficence, and the importance of consent.

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